But it was more than what I expected to know. I tried to consume all of what the doctor had to say so I know what to do next. :'(
Andrea had a series of spinal x-ray. It's actually my first time to see an xray of her spine. We know that she has a thoracic level of spinal cord defect (T5-T8). That's why her legs and trunks were paralyzed. The doctor said her spine had a moderate outward curve which is why she has a tendency to slouch when sitting. And when not properly handled, the bone might protrude and may cause further problems. He said she also had a congenital rib gap defect which constrict her lungs and this might cause some pulmonary complications as she grows up. This is also one of the possible reason why she lost her speech because of the insufficient air thru her lungs.
He suggested having these corrected through surgery. But he still have to meet with her pulmonary doctor. They still need to talk about her case and how they will handle it or if it's really necessary at this stage. She is at the growth stage, so having this operation will still cause some problem as her bone develop.
We told him that as much as possible surgery is not an option for us since we're not sure if she can handle it. He suggested putting braces on her as well as wheelchair modifications. But avoiding surgery might also cause complications and restrictions for her in the near future.
Being on a crossroad again gives me chest pains. Because the last time we decided to do what's suggested to be best for her, she lost her eyesight. Now, are we ready to take another risk?
May the Lord God guide us.
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